D2K, PEALS, Newcastle University


METADAC seeking new expert members

The METADAC Data Access Committee is currently accepting applications for Committee members with relevant experience in:
Genetic/medical science
Clinical expertise
Socio-legal expertise
The METADAC is a multi-agency multi-study data access structure providing an independent mechanism for the efficient and effective governance of access to biosamples and health-related data from several leading UK longitudinal studies. The Committee meets every six to eight weeks by teleconference, and two face-to-face meetings are held annually (typically in London). Please email a 2-page CV and covering letter demonstrating suitability for the role to the Head of METADAC Secretariat, Dr Stephanie Roberts, at metadac@newcastle.ac.uk. The deadline for application is Monday 2 December 2019. Please note members’ expenses are paid but the role is not remunerated.



METADAC in London: Development Workshop September 2019

This September the METADAC had their annual face-to-face workshop with colleagues from across the UK in attendance at the Wellcome Collection in London. We welcomed the Imagine ID study and Natsal for the first time. The data access committee worked industriously throughout the day to develop and produce strategies and policies that the METADAC will be introducing in 2020: communications and promotion of responsible data use, a new online application form and associated guidance, the criteria for variable selection, and improved plain-language criteria for applications.

The committee considered how best to help applicants write strong applications that clearly meet the assessment criteria. The discussions will be written up as new transparent guidelines to be honed and launched in 2020.

We reviewed the communications strategy of the METADAC for the next 12 months, to include joint workshops with partners such as UKDA, CLOSER and the affiliated cohort studies, and information outlets such as Twitter, a monthly blog post, and a quarterly newsletter. The METADAC website will be going through a brand new makeover to become more user friendly, providing a new Frequently Asked Questions page and respective links to our blog and newsletter.

We assessed the progress of the online application form for METADAC and how it can best support applicants through the application process. We evaluated how emerging technologies will affect application styles in future.

We expect our next face-to-face workshop in April 2020 to be just as engaging and successful as it was this September. Thank you to everyone who joined us in London for your time and expert engagement with the day’s discussions.