D2K, PEALS, Newcastle University

Governance of data and sample access

METADAC considers complex issues for biomedical data access for four longitudinal (cohort) studies. When you need just GWAS genetic data or phenotype data (not both together), your application will not normally need to be considered by the METADAC, and you can follow the links below to the studies’ information on data access.

Application types processed by METADAC

Please apply to the METADAC when:-

  • You require genetic data linked with other information
  • You are applying for use of biological samples
  • You are applying for exome sequencing data (fastq or vcf file-types, even when not linked with other information).

For all these types of application, please use the forms below. If possible please return the forms well before the next Committee deadline.

METADAC Application form for 1958 data and resources (word doc)
METADAC Application form for ELSA (word doc)
METADAC Application form for Understanding Society (word doc)


Governance routes for different types of application

  ELSA UKHLS 1958 1970 Millennium
– – – – – – – – – – – – – – – – – – – – – – CLS Studies – – – – – – – – – – – – – – – – – – – – – –
Non-genetic: Social/Survey/ Medical data only UK Data Service series 200011 UK Data Service series 2000053 UK Data Service series 2000032 UK Data Service series 200001 UK Data Service series 2000031
Genetic Data only; approval notified to EGA for issue. Contact ELSA for ELSA genetic data. See UKHLS web-page. Most datasets: WTCCC n/a n/a
Exome Sequence datasets: METADAC
Linked genetic and other (phenotype) data METADAC METADAC METADAC n/a n/a
Bio-medical Samples (with or without other data) (Not available) METADAC
(Not yet available, see UKHLS pages)
(Not yet available.)
Supporting information for METADAC applications Contact metadac@newcastle.ac.uk UKHLS documentation 1958 documentation 1970 documentation Millennium documentation


Dr Stephanie Roberts, Head of METADAC Secretariat