D2K, PEALS, Newcastle University

Membership and Terms of Reference

The METADAC Committee oversees applications for bio-data and samples from five major longitudinal studies: ELSA, Understanding Society and the CLS birth cohorts 1958, 1970 and Millennium, Natsal and IMAGINE ID. METADAC also has a wider remit to review current issues affecting data access and promote good practice and effective policies.

The Committee secretariat is Dr Stephanie Roberts, of the Health, Data and Society Group at the University of Newcastle.

Members

Membership of the Committee includes social scientists and clinical scientists with particular knowledge of data access in longitudinal studies, legal expertise in the same field, and lay members with an expert perspective as participants in other similar studies. Also present in teleconferences and meetings are representatives from each of METADAC’s studies, technical experts on the data, and METADAC’s researchers and funders.

Technical Review Team

The technical review team comprise relevant researchers, data managers and lab managers.

Observers

Observers, who contribute to discussions of applications and policy, include representatives from the longitudinal studies, from the METADAC funders and METADAC research team.

Name METADAC Role Affiliation
Murtagh, Professor Madeleine (Chair) Committee Member – Social Sciences Newcastle University
Walker, Mr Neil (Deputy Chair) Committee Member – Biomedical Sciences NIHR BioResource
Suderman, Dr Matthew Committee Member – Biomedical Sciences University of Bristol
Dove, Dr Edward Committee Member – Ethico-Legal University of Edinburgh
Hall, Ms Alison Committee Member – Ethico-Legal PHG Foundation
Hallowell, Dr Nina Committee Member – Social Sciences University of Oxford
Maughan, Professor Barbara Committee Member – Social Sciences King’s College London
Prior, Ms Gillian Committee Member – Social Sciences NatCen
McDonagh, Mr Josh Committee Member – Study Facing None
Viney, Dr William Committee Member – Study Facing Goldsmiths, University of London
Burton, Professor Paul (TRT Chair) Technical Review Team (1958BC) Newcastle University
Sanchez, Dr Aida Technical Review Team (1958BC) Centre for Longitudinal Studies, UCL
Church, Mr David Technical Review Team (1958BC) Centre for Longitudinal Studies, UCL
Garner, Mr Hugh Technical Review Team (1958BC) Newcastle University
Butters, Dr Olly Technical Review Team (1958BC) Newcastle University
Ring, Dr Susan Technical Review Team (1958BC) University of Bristol
Kumari, Professor Meena Technical Review Team (Understanding Society) University of Essex
Smart, Dr Melissa C. Technical Review Team (Understanding Society) University of Essex
Wong, Dr Andrew Technical Review Team (Understanding Society) University College of London
Ajnakina, Dr Olesya Technical Review Team (ELSA) University College of London
Sonnenberg, Dr Pam Observer – Natsal University College of London
Field, Dr Nigel Observer – Natsal University College of London
Steptoe, Dr Andrew Observer – ELSA University College of London
Wolstencroft, Ms Jeanne Observer – IMAGINE ID University College of London
Skuse, Professor David Observer – IMAGINE ID Behavioural and Brain Sciences, UCL
Galobardes, Dr Bruna Observer – Funder Wellcome Trust
Malloch, Mr Gavin Observer – Funder Medical Research Council
Swain, Ms Lauren Observer – Funder Economic Social Research Council
Conti, Ms Gabriella Observer – 1958 Birth Cohort University College of London
Cummings, Dr James Observer – METADAC Evaluation Newcastle University
Minion, Dr Joel Observer – METADAC Evaluation Newcastle University
Mangino, Dr Massimo Observer – Twins UK King’s College London
Machirori, Dr Mavis Observer – METADAC Evaluation Newcastle University
Benzeval, Dr Michaela Observer – Understanding Society University of Essex
Roberts, Dr Stephanie Observer – METADAC Secretariat Newcastle University