D2K, PEALS, Newcastle University

Data Access Committee

The METADAC committee oversees applications for bio-data and samples from five major longitudinal studies: ELSA, Understanding Society and the CLS birth cohorts 1958, 1970 and Millennium. METADAC also has a wider remit to review current issues affecting data access and promote good practice and effective policies.

The Committee secretariat is Dr Stephanie Roberts, of the Data to Knowledge Group at the University of Newcastle.

Members

Membership of the Committee includes social scientists and clinical scientists with particular knowledge of data access in longitudinal studies, legal expertise in the same field, and lay members with an expert perspective as participants in other similar studies. Also present in teleconferences and meetings are representatives from each of METADAC’s studies, technical experts on the data, and METADAC’s researchers and funders.

Name Role Affiliation
Professor Madeleine Murtagh (Chair) Social Sciences  Newcastle University
Neil Walker (Deputy Chair) Biomedical Sciences NIHR BioResource
Edward Dove Social Sciences with Legal Expertise  University of Edinburgh
Becci Griggs Participant Member University of Bristol
Alison Hall Ethico-Legal PHG Foundation, Cambridge
Dr Nina Hallowell Social Sciences University of Oxford
Professor Barbara Maughan Social Sciences King’s College London
Dr Gillian Prior Social Sciences  NatCen
Dr Matthew Suderman Biomedical Sciences  University of Bristol
Dr William Viney Participant Member

Technical Review Team

The technical review team comprise relevant researchers, data managers and lab managers.

Name Affiliation
Professor Paul Burton  University of Bristol
Tom Murphy CLS, Institute of Education
Dr Susan Ring University of Bristol
Dr Nina Rogers ELSA
Dr Andrew Wong University College London

Observers

Observers, who contribute to discussions of applications and policy, include representatives from the longitudinal studies, from the METADAC funders and METADAC research team.

Name Affiliation
Professor Alissa Goodman  University College London, 1958 Birth Cohort representative
Karen Dennison UKDA
Professor Meena Kumari Understanding Society
Professor Andrew Steptoe English Longitudinal Study of Ageing, UCL
Dr Massimo Mangino UKTwins study, Kings College London
Tristana Perez Wellcome Trust
Dr Neha Issar-Brown MRC
Audra Ryan ESRC
Dr Joel Minion METADAC Research Fellow, University of Newcastle
Dr Stephanie Roberts METADAC Secretariat, Newcastle University

 

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